We get a disability grant that helps pay for transport to the clinic, food and necessary clothes. The doctors and social worker help us with tips to cope with the illness and connect us with resources. Luckily I get emotional support from other family members, from my church and from God.
How you can help:
- We desperately need a fold up bed because my one brother is sleeping on the floor with a blanket.
- We need adult diapers and a commode because my other brother can’t make it to the toilet on time and if he does make it then he breaks the toilet seat because of his involuntary movements.
- A volunteer carer for a few hours on some days would be appreciated when I have to run my own errands.