HELPFUL CONTACTS

CAPE TOWN SUPPORT GROUP

GAUTENG SUPPORT GROUP

HASA does not accept liability for any damages whatsoever arising directly or indirectly from contact made with persons or institutions listed below. Please contact one of the Directors above if you have any other persons/institutions which we should add to this list.

UCT DIVISION OF HUMAN GENETICS

For assistance on medication

For predictive testing

For arranging clinic appointments

For Predictive Testing information

Dr. Donna Page

Dr Juan Schronen

Dr. Anderson

Genetics counsellors

Johannesburg

Pretoria

Care Facilities

Park Care Centre

Blymoedig (Pretoria North)

Care Facilities

Details on the Western Cape governmental community based services

Legal Resources

List of Private Attorneys in the Western Cape from UCT Law clinic

The following resources could possibly assist if there is a need for an acute short term intervention:

  • Click here for information on Psychiatric Hospitals in the Western Cape
  • Click here for information on Cheshire Homes SA
  • HASA members, please be aware that there are currently no long term placements for late stage HD patients in South Africa. Potential admission to these facilities will be up to the discretion of the facility management team – there is NO guarantee that the presenting symptoms of the patient concerned will fit the facility’s admission criteria.
  • International care model for HD: Topaz in the Netherlands.
  • If you need legal advice concerning curatorship, the labour law or domestic affairs in relation to living with HD, you can contact the UCT Law Clinic or UWC Law Clinic.

Robin Trust – www.robintrust.com

Gauteng facilities

  • Depending on how advanced the illness is, the nearest hospice might be able to help, even if only with advice about places of care, etc. They also offer assistance at home if they can and this won’t cost anything or very little.
  • A caregiver coming in a few days a week might be a short-term answer – contact Celeste from Care Group SA, (084 393 7581). She heads a placement agency for Caregivers and was trained in the UK. She and her caregivers come with very good references.
  • Another option in Johannesburg might be the St Giles Home for the Disabled – www.stgileshome.org.za or 011 615 7681. Speak to Diane.
  • Blymoedig Kliniek, just outside Pretoria www.blymoedig.co.za.

Park Care Centre